Hi everyone, not had a good day, went shopping for toiletries etc this morning, felt a bit nauseus, only out for about an hour. When ready to leave I felt absolutely exhausted, hard to put one foot in front of the other!! By the time I got home I just went straight to bed. Feeling a little better now, just so tired!! Everything hurts, think its stress too, with the platelet problems. Need to rest tomorrow too I think. Have Amelie on Monday, but my sister will come to the appt with me to take care of her, she's good to me!!! Not used to feeling this way, so its hard to cope with it. My neck and shoulder getting really painful again, been reasonably ok since going on the pred, but much worse today.

Dear Barbara,
Sorry to hear you are having such a tough time today.
Rest,rest,rest and more rest for you I think.
Stress and R.A = bad combination!
Personally, I am a stress head!
If I have not heard from my 3 adult kids for a few days, guess what?
I telephone them!
Almost invariably I hear stories from them that make my hair stand on end
and I get STRESSED!
I even dream about them after these worrying conversations-instigated by ME!
Their catch-phrase is "don't tell Mum!" because they know that the worry makes me ill.
But because I know that they have operated the "don't tell Mum" system for about 20 years now,
I know that if I don't hear much from them they are hiding things!
I always want to "fix things" and in their lives there are so many things that I cannot fix. Only they can.
Rationally, I understand all this, but instinct is a strong thing too.
Please try not to think too much about the Platelet thing, let the Doctors sort it out.
Wishing you a relaxing evening and hoping that your neck and shoulder settle down.
I sometimes have had the odd flare in my neck and shoulder, only to find that it has disapeared again
within a day or two.
R.A is such a weird and mysterious disease in so far as it's there one day and gone the next for specific areas.
Thinking of you,
Fiona
P.S. Your sister sounds terrific.

Feel so sorrry for you, I am finding I feel the same at the mo so I am sending you a huge hug.
Take care

Hey Barbie,
Sorry u having a bad day hope u have managed a little rest now , will be thinking of you and hope things get more sorted soon,
AND Hooray for sisters! Glad u got each other xx
Take care, love Liz xxx

Hello Barbs aww sendin you a BIG HUG rest up till monday,good your sis so helpful.ps the steriod tablets may be givin u hot flushes do me.
sorry see u had such bad day take care.
all very best for monday.

you say feeling stressed do you mean agiatated anxious as steriods can affect moods,for me i ca be tearful then hyper then stressed.
doesnt usally last.

lv melly

Thanks for messges everyone. Just feeling really odd ((!!!) achey, tired and body feels heavy, cant explain it really. Didnt know about the hot flushes with the pred, although I get them anyway, but its been worse. I dont feel anxious, just worried about tests I think, and also as now I am on the pred and plaquenil whether it will affect these other tests. In a way I wish my GP hadnt sent me for the tests about the bruising in the first place, then I'd still be blissfully ignorant!!

HI Barbie

Sorry you're feeling so stressed out and in pain. If you can, try resting with hot water bottle, put your feet up and relax. Easier said than done, though. Maybe when you find out more about the tests you'll feel a bit better. I hope you find something to help the pain.

Lyn

Hi Amanda , lol!!! you do make me laugh!!! still not too good, am hoping its a little better by tomorrow. You need to take it easy too, sounds like a really hectic couple of days. I think I'll have another early night and hope for the best x

Hi Barbara- i hope things are settling down for you-oh how I can empathise with out about worrying silences from the grown up children!